I went to see a headache specialist today, and left with an appointment for surgery on my left hand for Wednesday. Try wrapping your head around THAT one, eh?
Oy. Currently battling infection on December's surgical site and praying that I don't lose the gland altogether, so there's that....
I see a physiologist on Friday...
I've had an average of 2 appointments per day at least 4 days per week recently. It's maddening, really.
I miss fun. I miss music. I miss shows. I miss performing. I miss hugs. I miss being social. I miss snuggling. I really could use a vacation.
Showing posts with label health. Show all posts
Showing posts with label health. Show all posts
Wednesday, February 12, 2014
Sunday, March 25, 2012
SO sick of being sick.
So the previously mentioned pneumonia never really fully went away.
I am still suffering now, but definitely more mobile... probably TOO mobile right now... I think I walked at LEAST 40 miles this week, and still had a boatload of doctor appointments.
So the other night, I went to cook something in the oven for the first time since I moved in. I set it to preheat, (empty) and less than 10 minutes later, the alarm was going off. There didn't seem to be much/any smoke, but there was a definite smell, so I don't know if it was the smoke or the carbon monoxide detector.. i hope there IS a carbon monoxide detector... I went to open the windows to find that they are apparently painted shut (the kitchen ones) I went to open the middle room ones and the top of one fell down when I unlocked it and the other one seems to be the only one in the house that opens, but like ALL of them, there is some kind of fixture on it that makes it only open about 4 inches. This means that, in the event of a fire, unless I physically BREAK a window, I have ONE exit and one exit only- through the kitchen door.
Tonight, I noticed that the middle yard-facing window in my bedroom was cracked, and since it got cold again, I went to close it, and the top fell down. I can't reach high enough to get it to close all the way, and the lock seems to be busted.
I thought I was freezing all this time because of pneumonia. It may well be that I got and kept the pneumonia because the freaking windows have been open since before I moved in and I didn't know it because I was (am) so sick.
I had the thermostat turned all the way down for the past few days, but since it got cold again, I turned it on, and now the house smells.
The hose in the kitchen sink does not come out of its holster thingy, and also fills up when I try to do dishes (this happened the first time I ever turned the faucet on, so its not like I had something stuck in there)
The shower doesn't even get all that hot. It gets warm enough to not freeze- that's about it.
I don't know what to do. I don't want to come across as rude and/or accusatory to the landlady, but I also need to be safe.
In other news, I saw the kidney doc the other day and he said that my kidney function is stable. Not better, but not worse. I'll take what I can get. He also says that he doesn't believe the scale that says I have gained weight. He says I am definitely smaller and he can tell I have been exercising.
I am going in on Monday to meet with a rep about insulin pumps and to be put on a saline pump to see if I can handle it before making my decision about it. My insurance does not and will not cover the tube-less pump, as it is not considered a "sustainable device" and I am really nervous about having a tube hanging out of me, because, not for nothing, but I am a superklutz. We shall see, I guess. I don't really know what to think yet.
My stomach still hates me. I still haven't been eating much. I did have a gastric emptying exam this week so I need to get in touch with whomever is reviewing that so maybe I can get some less-vague answers this time.
Oh, and I was thrown (physicall) out of a cab last weekend and I knew I was hurt, but thought it was mostly from being scared and a little bruised. I was wrong. Something is seriously up with my back and I need to get it checked out.
My other chief concern of the moment is my voice. I fear I am losing it. I lost my voice for 7 years before. I can't do that again. I just can't. I need to sing. I have to. I need to be able to sing relatively WELL too. Something is happening to it and I don't even have the first clue on what kind of doctor I would need to see to address this situation, or if my insurance would cover such a doctor.
It is 5:25am and I have been up since 8am, and only got two hours of sleep before that. I should probably go try to pass out now.
I am still suffering now, but definitely more mobile... probably TOO mobile right now... I think I walked at LEAST 40 miles this week, and still had a boatload of doctor appointments.
So the other night, I went to cook something in the oven for the first time since I moved in. I set it to preheat, (empty) and less than 10 minutes later, the alarm was going off. There didn't seem to be much/any smoke, but there was a definite smell, so I don't know if it was the smoke or the carbon monoxide detector.. i hope there IS a carbon monoxide detector... I went to open the windows to find that they are apparently painted shut (the kitchen ones) I went to open the middle room ones and the top of one fell down when I unlocked it and the other one seems to be the only one in the house that opens, but like ALL of them, there is some kind of fixture on it that makes it only open about 4 inches. This means that, in the event of a fire, unless I physically BREAK a window, I have ONE exit and one exit only- through the kitchen door.
Tonight, I noticed that the middle yard-facing window in my bedroom was cracked, and since it got cold again, I went to close it, and the top fell down. I can't reach high enough to get it to close all the way, and the lock seems to be busted.
I thought I was freezing all this time because of pneumonia. It may well be that I got and kept the pneumonia because the freaking windows have been open since before I moved in and I didn't know it because I was (am) so sick.
I had the thermostat turned all the way down for the past few days, but since it got cold again, I turned it on, and now the house smells.
The hose in the kitchen sink does not come out of its holster thingy, and also fills up when I try to do dishes (this happened the first time I ever turned the faucet on, so its not like I had something stuck in there)
The shower doesn't even get all that hot. It gets warm enough to not freeze- that's about it.
I don't know what to do. I don't want to come across as rude and/or accusatory to the landlady, but I also need to be safe.
In other news, I saw the kidney doc the other day and he said that my kidney function is stable. Not better, but not worse. I'll take what I can get. He also says that he doesn't believe the scale that says I have gained weight. He says I am definitely smaller and he can tell I have been exercising.
I am going in on Monday to meet with a rep about insulin pumps and to be put on a saline pump to see if I can handle it before making my decision about it. My insurance does not and will not cover the tube-less pump, as it is not considered a "sustainable device" and I am really nervous about having a tube hanging out of me, because, not for nothing, but I am a superklutz. We shall see, I guess. I don't really know what to think yet.
My stomach still hates me. I still haven't been eating much. I did have a gastric emptying exam this week so I need to get in touch with whomever is reviewing that so maybe I can get some less-vague answers this time.
Oh, and I was thrown (physicall) out of a cab last weekend and I knew I was hurt, but thought it was mostly from being scared and a little bruised. I was wrong. Something is seriously up with my back and I need to get it checked out.
My other chief concern of the moment is my voice. I fear I am losing it. I lost my voice for 7 years before. I can't do that again. I just can't. I need to sing. I have to. I need to be able to sing relatively WELL too. Something is happening to it and I don't even have the first clue on what kind of doctor I would need to see to address this situation, or if my insurance would cover such a doctor.
It is 5:25am and I have been up since 8am, and only got two hours of sleep before that. I should probably go try to pass out now.
Tuesday, December 6, 2011
Help needed.
So obviously, I have a lot of health issues.
That has been well-established in this blog.
It is getting worse, and the money situation (I am on Social Security disability and I make less than $9,000 a YEAR) has gotten worse with all of the med changes and other related expenses.
Now, I am being evicted for no good reason.
I am fighting it to keep a roof over my head until I find a new place, and searching for one like crazy, but I need to get out of here, and fast.
My landlords are crazy and abusive in many, many senses of the word. I am not safe here.
I am looking for contributions, because I will likely have to pay either a security deposit and/or a realtor fee (last resort- I am looking to NOT go through a realtor) I can't do it alone.
If you are able to help in any way, I would really appreciate it. I made a paypal button and hope that it works.
You can also just send a "gift" to curiouspatient@gmail.com
I really hate that I am doing this, but I am pretty much having a nervous breakdown and I don't know what else I can do.
Thank you,
A Curious Patient
That has been well-established in this blog.
It is getting worse, and the money situation (I am on Social Security disability and I make less than $9,000 a YEAR) has gotten worse with all of the med changes and other related expenses.
Now, I am being evicted for no good reason.
I am fighting it to keep a roof over my head until I find a new place, and searching for one like crazy, but I need to get out of here, and fast.
My landlords are crazy and abusive in many, many senses of the word. I am not safe here.
I am looking for contributions, because I will likely have to pay either a security deposit and/or a realtor fee (last resort- I am looking to NOT go through a realtor) I can't do it alone.
If you are able to help in any way, I would really appreciate it. I made a paypal button and hope that it works.
You can also just send a "gift" to curiouspatient@gmail.com
I really hate that I am doing this, but I am pretty much having a nervous breakdown and I don't know what else I can do.
Thank you,
A Curious Patient
Thursday, January 15, 2009
More...
So continuing on...
When this all began, I went to one ER and was told that it was in my head, given an ativan and sent on my way. Two days later, I was taken to a different ER, more blood was taken and oxygen was given but I was told that I was not going to die that very night, so I had to go.
I was seen at a hematologist's office, but was seen only by a nurse practitioner, never actually seen by the hematologist. Many blood tests were done.
Many outside tests were ordered:
Stress echo- I was told this was normal, even though I felt like I was going to die.
Abdominal CT- normal
Bilateral leg ultrasound- normal
Abdominal MRI- a hepatic adenoma was found- a (at that time) benign) tumor that was presumably caused by LoEstrin24. This was told to me on July 28th, 2008 and I was told to come off of the pill immediately and that the MRI would be repeated after a brief time off of the hormones. As of this date, I can't get anyone to order the repeat of the MRI.
Pelvic Ultrasound- normal
The nurse practitioner put me on Lisinopril.
I have seen my gyn and been cleared of anything on his end.
My first "new" Primary Care Physician told me that he would not be my doctor because I have too many previous diagnosis. This was before I even swelled up. I got a new PCP and he ran a bunch of blood tests and sent me to a kidney specialist.
I had a terrible cough that would not go away, and the PCP determined (after months of antibiotics) that it was the Lisinopril causing an upper respiratory infection. I was taken off of it and eventually, the cough got a bit better. I still have left-over effects from it.
The kidney specialist first said (without doing ANYTHING, I kid you not) that there is nothing wrong and sent me home. Then she called and said that there was protein in a previous urine (not done in her office, because again, she did NOTHING) so I needed to come back to do a 24 hour urine. I did that, and she decided that being on Lasix and Triemterene was dehydrating me, so I needed to come off of it. She also said that my potassium was low.
My PCP put me back on the Triemterene, but on a lower level- Maxzide, which I am on now. I was off and on the Lasix a couple of times too. Nothing has actually shown any results, diuretic-wise though.
I have gotten weaker and weaker and my mobility has gotten severey impaired. I still have no answers. I will write more later. I am too tired.
When this all began, I went to one ER and was told that it was in my head, given an ativan and sent on my way. Two days later, I was taken to a different ER, more blood was taken and oxygen was given but I was told that I was not going to die that very night, so I had to go.
I was seen at a hematologist's office, but was seen only by a nurse practitioner, never actually seen by the hematologist. Many blood tests were done.
Many outside tests were ordered:
Stress echo- I was told this was normal, even though I felt like I was going to die.
Abdominal CT- normal
Bilateral leg ultrasound- normal
Abdominal MRI- a hepatic adenoma was found- a (at that time) benign) tumor that was presumably caused by LoEstrin24. This was told to me on July 28th, 2008 and I was told to come off of the pill immediately and that the MRI would be repeated after a brief time off of the hormones. As of this date, I can't get anyone to order the repeat of the MRI.
Pelvic Ultrasound- normal
The nurse practitioner put me on Lisinopril.
I have seen my gyn and been cleared of anything on his end.
My first "new" Primary Care Physician told me that he would not be my doctor because I have too many previous diagnosis. This was before I even swelled up. I got a new PCP and he ran a bunch of blood tests and sent me to a kidney specialist.
I had a terrible cough that would not go away, and the PCP determined (after months of antibiotics) that it was the Lisinopril causing an upper respiratory infection. I was taken off of it and eventually, the cough got a bit better. I still have left-over effects from it.
The kidney specialist first said (without doing ANYTHING, I kid you not) that there is nothing wrong and sent me home. Then she called and said that there was protein in a previous urine (not done in her office, because again, she did NOTHING) so I needed to come back to do a 24 hour urine. I did that, and she decided that being on Lasix and Triemterene was dehydrating me, so I needed to come off of it. She also said that my potassium was low.
My PCP put me back on the Triemterene, but on a lower level- Maxzide, which I am on now. I was off and on the Lasix a couple of times too. Nothing has actually shown any results, diuretic-wise though.
I have gotten weaker and weaker and my mobility has gotten severey impaired. I still have no answers. I will write more later. I am too tired.
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