Tuesday, March 30, 2010

More on that...

I went back to the ER on Saturday.
The pain did not stop, and it got worse. I got pain in my lower back, and a really terrible, bizarre pain that started in the front-right side of my nack and wrapped around to the center back-right side of my neck. It hurt SO badly. I also swelled up more.
I wound up getting admitted.
The staff at this particular hospital were so great. They treated me like a human being, and really seemed to want to find out what the heck was going on.
Sadly, when they discharged me on Monday afternoon, all they had to say was "Well, we're not going to diagnose you with any weird diseases or do any invasive surgical procedures, but we still have no idea what is going on, sorry." Yeah. So that didn't help much.

While I was in, they did a cortisol test (?) where they took blood, injected me with something and then took more blood an hour later. They say the test showed it wasn't the cortisol levels..
They took an HIV test, and that was negative.
My Potassium was low one time, so they gave me some to drink, and I guess it brought it back up.

My blood sugars have been pretty darn good too.

I have no idea what the heck is going on. It's been almost 2 years. I need answers.

Friday, March 26, 2010

So let's see...

Last week, I had a kidney doc appointment. I got seen 2 hours after my appointment time, and only for about 15 minutes, most of which was spent with the doc typing. I left to go to the blood lab and wound up having to sit down for a while and eat a liquid lollipop because my blood sugar had taken a nose dive. Got blood work done, and left.

On Thursday, I had an endocrine appointment. got praised for doing well and having my A1C drop several points. I have a ways to go, but am back in the single digits, which is good. More blood work.

Friday I went to New York City for a show and spent the night wandering around. I was walking almost the entire time between 12:20am and 8am, with the exception of about an hour or two total. I mapped it out a bit and estimate that I walked just less than a marathon. When I got back to Boston, I threw up blood at the train station and was rushed to the hospital, where I was treated like absolute shit. I was discharged with Ranitadine, Protonix, and Zofran(?) which was not covered by insurance and cost about $70. Eep. I spent the next couple of days pretty much unable to move, and had another swelling episode. I stopped the Protonix, as that had made me gain weight in the past... I am still swollen though, and in a lot of pain.

On Wednesday, I had an appointment, and then I went to visit a friend of mine. I was fine, albeit a bit tired, and then all of a sudden I had a massive stabbing pain in the lower left side of my stomach and I could barely move. I felt like I had to pee, so I went into the bathroom. Nothing. Here I am, the girl on 2 diuretics, unable to pee. This is not good. My friend insisted on calling an ambulance. They came, they carried me down most of the stairs, and then they dropped me. No, I am not joking. They picked me back up, and got me into the ambulance and took me to yet another hospital. Luckily, this one treated me like a human being. It was almost freaky. They did a bunch of tests. It was scary, not gonna lie about that. It was also very odd that they wanted me to umm... put the thing in for the pelvic ultrasound BY MYSELF, but yeah, that wasn't about to happen, as the way I am swollen I certainly couldn't bend at the angle they had me at, and also, hello... abdominal pain!?!?!? They did an abdominal and pelvic ultrasound, a regular pelvic exam, and an abdominal CT. They said that I had blood in my urine, a cyst on my right ovary, and a small kidney stone, as well as probably ligament strain.

They gave me a prescription for oxycodone and discharged me. I still haven't filled the prescription because I can't get to the pharmacy. I haven't eaten since the very small amount I had at about 7am on Thursday. I've got nothing to eat or drink in the house, so basically, I am screwed.

Thursday, March 25, 2010

Well then...

So I had some pretty positive stuff to write, and then my world blew up.
I will still come back and write more, but right now, my 3rd dose of morphine is wearing off and I need to go try to pass out before I feel the loss.
I have had so many medical emergencies in the past week, my head is spinnning.
Threw up blood on Saturday in a train station, went to hospital via ambulance, was brutally mistreated and discharged, with medicine that has swelled me up in the past.
Swelled up 10+lbs on Sunday/Monday.
Wednesday night, I got a sharp, sudden pain, which wouldn't go away, on my lower left abdomen. Was taken to hospital via ambulance from my friend's house.
Cyst on right ovary, kidney stone, and "probable ligament strain"...
So yeah, I don't have the strength to do much right now, but will write more when i am able.

Thursday, March 11, 2010

Still moving along...

I always think that I should be updating this thing more often, but then I stop and think "Well, what is the point, its the same old story again" which os pretty much the case right now.

I continue to walk. Quite a bit, actually. In fact, just this weekend I walked around for an hour and a half, looking for a group of people I was supposed to meet up with for a random, unknown spontaneous event.

Once I finally found them, it turns out that there would be more "walking" involved- a la Society of Silly Walks. Basically, I was walking around in one way or another from 1pm- 6pm. Man, did my body ever hate me for that!! Still, it was fun.

I also walked about 2 miles on Friday, and have been pretty active all week thus far. Oh, did I mention that I may or may not have a break in my left ankle/heel? Yeah, so a lot of this was with an air cast on or just having taken it off.

As far as doctors are concerned, I see both the kidney specialist and the endocrinologist next week. I don't really know what to expect. I wish I could get moving toward the pump. I mean, I am definitely making progress, but I wonder when they will actually start me on it...

I don't really know what else to say that isn't totally stale. I am still sick to death of being swollen and in pain, but I am doing the very best I can to avoid being negative and live my life to the fullest.