Tuesday, July 27, 2010


So my gyn said that he was at a loss. He said that the ultrasound was clear, but that my white count was elevated. He said to call my PCP, because he doesn't think its anything on the gyn end of things, but to keep him posted.
I called my PCP, and was supposed to go in to give a urine specimen on Saturday, but didn't realize that they closed at 11:30am, so I didn't get to. (This was to test for resistance to Cipro.)

Saturday and Sunday I woke up with pain in my surgical eye worse than it had been. On Saturday it got better (sort of) after a while, so on Sunday I tried to ignore the pain, and went to an audition. I went right from the audition to the ER at the place I had my surgery.
The (seemingly new, young) doctor applied fluroscein to my eyes, not realizing I am allergic to it (even though we went over my allergies twice..) and I had a reaction. I was treated with Benedryl and am fine, but they wouldn't let me leave on my own, so I had to call for a ride. (Oh, and the diagnosis was that I scratched my cornea. I guess not having an ointment to apply makes the eye dry out at night and it tore just from opening my eye.) Erythromycin(sp?) ointment was prescribed, as well as instructions to see the retina doc in 2 weeks, and continue the tapering of the Tobramycin(sp?).

Today, I had an appointment in the hematology/oncology department.
My white count is still up (finished with the cipro).
Something is "off" with my liver, which made the doc order an ultrasound of my kidneys, liver, and spline, which will be done in a couple of weeks. I might need an MRI or a biopsy.
I don't have leukemia, or any of teh major blood disorders that they tested for, so that's good...

I went over to the PCP's for the urine test, and then left and was wandering around, looked at books in town, got a coffee, wandered some more, and was about to head to my rehearsal when I collapsed. I was taken via ambulance to the hospital. EKG good, bloodsugar great, they did a pelvic exam since I still have the pain in the lower left quadrant. They gave me IV fluids for dehydration, and discharged me.

While I was waiting for the bus, a drunk guy came flying out of nowhere and slammed into the bus shelter and then fell on my feet. I think I jumped out of my skin. He got up, so I moved away and didn't do anything, since he was conscious and moving around and all.

Now I am home, exhausted, and hoping to catch up on some sleep during the day on Wednesday. I may try sleeping without the patch tonight. I haven't decided yet.

Wednesday, July 21, 2010


When my gyn's secretary called this morning, she said she had a cancelation for 1pm and to definitely come in. I got a ride over, gave the gyn the rundown of Monday night and he was mad as hell. He tried to get the ER doc on the phone right then and there. He sent me for bloodwork immediately, and said to come back after. I did and he said to go to my post-op for my eye (I had a 2:30 appointment at a different hospital for that) and come back as soon as humanly possiblewith a very full bladder for an emergency ultrasound.

My post-op, I arrived at 2 and got seen at around 3:30 then raced back to the other hospital hoping not to explode. Tests were done, and I was told to leave, but to call my doc 1st thing in the morning without fail. I am nervous as all get out.

On the plus side, I made it to my rehearsal, which was a much needed break from reality, and much welcomed interaction with other humans.

The vision in my left eye, without my glasses, while still blurry and kind of fisheyelenslike, has gone from 20/400 to 20/40...so that is good. I still have to not bend, and keep the eye protected (shield) but we have progress.

Progress is good.

Tuesday, July 20, 2010

70 posts later...

I am still sick. I still have no answers. I spent 8 hours in the emergency department last night because all of a sudden, out of nowhere, I got a sharp, stabbing pain in my lower left abdomen. It brought tears to my eyes, so instead of going to the rehearsal I was looking forward to, I went to the hospital.
I am placing this entry via phone, so I won't get into details, but I was discharged, basically sight unseen, with antibiotics and a pill to relieve symptoms of a UTI. I am still in a lot of pain. I have a call in to my gyn, because I think this needs to be addressed by someone in that field, just to be safe.

Also, for the past week, since my surgery, I have spent about 85% of my time away from my home, and I have been slightly healthier in general, and the swelling has gone down some. I really need to look into finding out how to find out if I am allergic to my home. I have never dealt with something like this before. I also wasn't sick like this until I moved to my current residence.

Sunday, July 11, 2010

It's been a long week.

Thursday, I had my pre-surgery testing and physical and then I had the Avastin injection. That was NOT fun. I have had them before, but my left eye has been SO bad lately, it just hurt so much. I asked for Tylenol before I left.
I got an "air bubble" when I stood up, which I guess is fairly common, but no less annoying than you'd think. It basically looked like I had a black spot half the size of my eye.. in my eye, whether it was opened or closed. It seems to have finally broken up a little... just in time for them to slice it open on Tuesday. Ugh.
On Friday, I was up at 4:30am to go to a very early morning radio thing that I won my way into. After that, I came home, ordered a birthday present for a friend of mine, and did some work around the house and crashed for a while before heading to my birthday non-party thingy. Got to see a few friends I haven't seen in ages. That was fun. I do have to be careful with fruity drinks though. It is much harder to keep track when you can't taste the alcohol and you aren't paying. Ha! I had a good night though.
Saturday, I had rehearsal in the afternoon and then went to a house concert at a friend's place. It was amazing, and I think I left somewhere around 1:30am.
It is after 8am now, and I haven't slept... and some friends are picking me up on about an hour to go to some thing out of state.
Not really sure what to expect, but I am just trying to get as much fun/socialization in as possible before the surgery.

Wednesday, July 7, 2010

Tomorrow is going to suck.

I have to wake up at the asscrack of dawn to go to the hospital for pre-surgery-surgery.
I have to have a physical, then some testing (2 kinds) then an injection in my eye, then meet with the secretary, then go to ANOTHER hospital to see the diabetes nurse and the dietitian. Ugh.
Tuesday is the "real" surgery, and I am pretty scared.
Here's hoping I can get this place cleaned up and then have some fun before I become incapacitated again.