So those dietitian/nutritionist appointments I had this week?
First, the dietitian was trying to help me with carb counting, which was all well and good until she started using McDonald's items as examples.
Anyone who knows me knows I don't tend to eat that crap.
Then, I went to the nutritionist, and (this is the 2nd time I have met him) he came in and said "your diabetes is in terrible control" to which I responded "Excuse me? Look at my numbers. I have a ways to go, but my A1c is down to 9 from FOURTEEN, so don't you DARE say that to me." He looked at my chart and realized that I was correct.
He then upped the does of my thyroid medication and sent in a referral for Gastric Bypass Surgery.
*blinkblink*
2 years I have been trying to figure out how and why I gained 100lbs in 3 days and NOBODY can tell me any damn thing... but NOBODY has brought up GBS.
I am going in for an information session (which apparently is "mandatory" if I do wind up wanting it...) in about a month. I will hear them out. I am indeed curious to see WHY they think that a surgery to remove FAT from my body will be of any use when its the FLUID that is the problem. Really.
I am going in with a positive attitude and an open mind.. but I will also be going in chock full of questions and hopefully with a friend or few to help me get them answered.
Meanwhile, the anxiety issues still trouble me, and I am again wide awake at 3am.
Showing posts with label severe edema. Show all posts
Showing posts with label severe edema. Show all posts
Thursday, May 6, 2010
Sunday, May 2, 2010
Moving right along...
Still having eye issues. Doing the best I can to make it through the production I am in at the moment, and thankful for some amazing people helping to make it alright.
My rape crisis counselor is trying to help me to find some longer-term counseling, but at this point, I am on waiting lists. We shall see.
I had an appointment with the diabetes nurse, and she informed me that I have lost 15lbs since I last saw her in January. I still have a long way to go and a lot of issues to deal with, but at least its something.
I meet with a dietitian and a nutritionist on Monday and have no idea what to expect. I meet with a hematologist next week, and I am very nervous.
I am so drained, and in so much pain. I just want it to stop.
My rape crisis counselor is trying to help me to find some longer-term counseling, but at this point, I am on waiting lists. We shall see.
I had an appointment with the diabetes nurse, and she informed me that I have lost 15lbs since I last saw her in January. I still have a long way to go and a lot of issues to deal with, but at least its something.
I meet with a dietitian and a nutritionist on Monday and have no idea what to expect. I meet with a hematologist next week, and I am very nervous.
I am so drained, and in so much pain. I just want it to stop.
Monday, February 1, 2010
Ow.
So I just left a voicemail for my primary care doctor. I was pretty much crying like a baby.
Since I started the Bumex a few days ago, I have been in more pain, been moving less effectively, more swollen...
It has just been so bad.
My mother went to give me a hug goodbye and I jumped a mile from pain.
She said there is a lump on my back about the size of the palm of my hand.
I told the doc in my voicemail that I can't take it and need to know what to do. Hopefully she calls in the morning. She's usually pretty good about that sort of thing.
I can't even describe to you how I feel right now.
Then pain is so bad.
Since I started the Bumex a few days ago, I have been in more pain, been moving less effectively, more swollen...
It has just been so bad.
My mother went to give me a hug goodbye and I jumped a mile from pain.
She said there is a lump on my back about the size of the palm of my hand.
I told the doc in my voicemail that I can't take it and need to know what to do. Hopefully she calls in the morning. She's usually pretty good about that sort of thing.
I can't even describe to you how I feel right now.
Then pain is so bad.
Thursday, January 7, 2010
I guess I should updte.
I had my surgery on my left eye on 12.30.09.
The doc used a different type of laser than the other ones had been, explaining that it was going to give the ability to get more pin-pointed areas.
It was way more intense, it hurt like hell, but I got through it.
I wound up having unexpected oral surgery a week later (1.5.10) because I woke up choking on a filling and a piece of my tooth, I would assume. It couldn't be saved, so I lost a molar. It took a very long time to stop bleeding, and it still hurts a bit. I go back on Tuesday to have the stitches removed and hand over my partials so that they can add the now-missing tooth to it. :(
I had an appointment with the diabetes nurse today. She said that although we aren't exactly where we want to be, that I am going a great job at keeping track of stuff, doing the right thing, and whatnot. She said that 50% of my bloodsugars are where we want them to be, which is MUCH better than they used to be.
Today, a urinalysis was submitted, and blood drawn to text electrolytes, lipids, magnesium, A1C, thyroid and basic blood count.
I hear that my echo-cardiogram shows that whatever is causing this edema is NOT heart failure. A small comfort, that. Still don't know what it IS. I mean, we know I have kidney disease, but I was told that it COULDN'T cause the level of edema I have. I can't catch a break.
Today, at my nurse appointment, my left eye started acting a little funky. By the time I was done with the lab tests, it was really taking a toll on my line of vision. I went to the ER at the hospital my retina doc is at, and saw the fellow. I was informed that there was no new bleeding (good) and that this was scar tissue from the surgeries and it just moved (not great) and I'd just kind of have to learn to "deal with it" or something. Well, doing the best I can- it isn't easy, but I am trying to stay positive at least a little bit.
I am so worn out. So tired. I need answers, not more walls to climb.
The doc used a different type of laser than the other ones had been, explaining that it was going to give the ability to get more pin-pointed areas.
It was way more intense, it hurt like hell, but I got through it.
I wound up having unexpected oral surgery a week later (1.5.10) because I woke up choking on a filling and a piece of my tooth, I would assume. It couldn't be saved, so I lost a molar. It took a very long time to stop bleeding, and it still hurts a bit. I go back on Tuesday to have the stitches removed and hand over my partials so that they can add the now-missing tooth to it. :(
I had an appointment with the diabetes nurse today. She said that although we aren't exactly where we want to be, that I am going a great job at keeping track of stuff, doing the right thing, and whatnot. She said that 50% of my bloodsugars are where we want them to be, which is MUCH better than they used to be.
Today, a urinalysis was submitted, and blood drawn to text electrolytes, lipids, magnesium, A1C, thyroid and basic blood count.
I hear that my echo-cardiogram shows that whatever is causing this edema is NOT heart failure. A small comfort, that. Still don't know what it IS. I mean, we know I have kidney disease, but I was told that it COULDN'T cause the level of edema I have. I can't catch a break.
Today, at my nurse appointment, my left eye started acting a little funky. By the time I was done with the lab tests, it was really taking a toll on my line of vision. I went to the ER at the hospital my retina doc is at, and saw the fellow. I was informed that there was no new bleeding (good) and that this was scar tissue from the surgeries and it just moved (not great) and I'd just kind of have to learn to "deal with it" or something. Well, doing the best I can- it isn't easy, but I am trying to stay positive at least a little bit.
I am so worn out. So tired. I need answers, not more walls to climb.
Saturday, December 26, 2009
Quickly...
Surgery scheduled for 12/30... pretty much starting off the year as I began it, on that front.
Swelling again, which is very painful and makes mobility of any sort quite difficult and painful.
I am very nervous about all of this, and recently found a photo of myself from 2 months before this all began and can't get over it. I looked so good- I don't mean that in a cocky sort of way, but rather just that I thought, at that point, that I was horrid looking, and now... I look like hell and feel like hell and seeing me look that good is just baffling and brings tears to my eyes.
I really wish someone would give me a diagnosis and a treatment.
I am out of strength and will.
Swelling again, which is very painful and makes mobility of any sort quite difficult and painful.
I am very nervous about all of this, and recently found a photo of myself from 2 months before this all began and can't get over it. I looked so good- I don't mean that in a cocky sort of way, but rather just that I thought, at that point, that I was horrid looking, and now... I look like hell and feel like hell and seeing me look that good is just baffling and brings tears to my eyes.
I really wish someone would give me a diagnosis and a treatment.
I am out of strength and will.
Wednesday, November 18, 2009
I guess I should do a basic round-up.
On a somewhat unrelated note, I fell down some stairs this weekend.
Went to the hospital via ambulance when ibuprofen didn't help.
As I expected, nothing was broken, but I sprained my wrist and knee. I was given immobilizers for both as well as a cane.
Kind of hard to get around with them, and not entirely sure that they are helping. I am in pain, but trying to push through. I have not filled the prescriptions for pain medicine yet. I hate taking extra pills... but damn, this all hurts.
What I could really use is a decent massage. Heck, I could use any massage at this point.
So I have been on the new diuretic since Saturday. It is called Torsemide. No longer on the Lasix.
So the current med list is as follows:
Lantus ~ 50 units in the morning
Humalog~ 12-18 units with meals
Diovan~ 80mg
Levoxyl~ 100mcg (can't remember if I mentioned that my endocrinologist upped that last month or so...)
Zyrtec~ 10mg
Torsemide~ 20mg
Vitamin D~ 2/400 unit tabs
Study medication, which may or may not be a low-dose of Cymbalta (I am off of the Topamax temporarily for the study... and also that gastroparesis med)
No prescription:
Vitamin B Complex+C~ 100mg
Cinnamon~ 500mg
I really don't know if the CPAP machine is working. I ordered a new mask over a week ago now and it still isn't here, so I am using the one that bothers me quite a bit, and nobody has bothered to return my calls about that.
I have had the flu shot and the H1N1 shot. I was given Azithromicin last week when I was feeling like crazp, and after they had been telling me for 3 weeks to take Sudafed, which I did, and it didn't help.
I swelled up last week to the point where my legs where tight, shiny, and immobile. (along with the rest of me...)
I am so sick of going to doctor after doctor, after doctor and getting NOWHERE. No answers. Okay, if you don't know, how about you keep looking til you DO know? What do these people get paid for? "Oh, your electrolytes look normal and all" Okay, so what else could it be?
If my kidney function is good, then its not, then it is.. how about we investigate further?
Are we forgetting a few months ago when the allergist refused to do the tests? Outright refused? What if this is all a huge allergic reaction? But to what? I don't only swell up in the house. I have been swollen for 18 months now. It makes me sick to look at myself.
I am a good person, but people don't look at that. They look at the fact that no matter how damn actuve I am (and I am NOT a sit-around, lazy person. I am a here, theer , and everywhere person) the swelling holds me back and makes me look like a giant fat blob. I am carrying 100lbs of fluid around in me, and I can feel it, and it makes it hard to move, and it makes everything hurt all the time.
I am scared out of my mind, and I just want to be back to size 14-going-on-12-and-losing again.
I miss being somewhat decent looking. I miss being happy. I miss being able to kneel and bend and stretch and touch my toes and all that stuff that normal-ish people can do.
Went to the hospital via ambulance when ibuprofen didn't help.
As I expected, nothing was broken, but I sprained my wrist and knee. I was given immobilizers for both as well as a cane.
Kind of hard to get around with them, and not entirely sure that they are helping. I am in pain, but trying to push through. I have not filled the prescriptions for pain medicine yet. I hate taking extra pills... but damn, this all hurts.
What I could really use is a decent massage. Heck, I could use any massage at this point.
So I have been on the new diuretic since Saturday. It is called Torsemide. No longer on the Lasix.
So the current med list is as follows:
Lantus ~ 50 units in the morning
Humalog~ 12-18 units with meals
Diovan~ 80mg
Levoxyl~ 100mcg (can't remember if I mentioned that my endocrinologist upped that last month or so...)
Zyrtec~ 10mg
Torsemide~ 20mg
Vitamin D~ 2/400 unit tabs
Study medication, which may or may not be a low-dose of Cymbalta (I am off of the Topamax temporarily for the study... and also that gastroparesis med)
No prescription:
Vitamin B Complex+C~ 100mg
Cinnamon~ 500mg
I really don't know if the CPAP machine is working. I ordered a new mask over a week ago now and it still isn't here, so I am using the one that bothers me quite a bit, and nobody has bothered to return my calls about that.
I have had the flu shot and the H1N1 shot. I was given Azithromicin last week when I was feeling like crazp, and after they had been telling me for 3 weeks to take Sudafed, which I did, and it didn't help.
I swelled up last week to the point where my legs where tight, shiny, and immobile. (along with the rest of me...)
I am so sick of going to doctor after doctor, after doctor and getting NOWHERE. No answers. Okay, if you don't know, how about you keep looking til you DO know? What do these people get paid for? "Oh, your electrolytes look normal and all" Okay, so what else could it be?
If my kidney function is good, then its not, then it is.. how about we investigate further?
Are we forgetting a few months ago when the allergist refused to do the tests? Outright refused? What if this is all a huge allergic reaction? But to what? I don't only swell up in the house. I have been swollen for 18 months now. It makes me sick to look at myself.
I am a good person, but people don't look at that. They look at the fact that no matter how damn actuve I am (and I am NOT a sit-around, lazy person. I am a here, theer , and everywhere person) the swelling holds me back and makes me look like a giant fat blob. I am carrying 100lbs of fluid around in me, and I can feel it, and it makes it hard to move, and it makes everything hurt all the time.
I am scared out of my mind, and I just want to be back to size 14-going-on-12-and-losing again.
I miss being somewhat decent looking. I miss being happy. I miss being able to kneel and bend and stretch and touch my toes and all that stuff that normal-ish people can do.
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